Patient Perspectives

Patients describe their experiences.

Cataplexy: Sudden Loss of Muscle Control

“People began to tell me my face would drop.”

Patients describe the different ways that cataplexy affects them, from a subtle change in facial expression to the complete loss of muscle tone.

These videos are intended to give healthcare professionals a better understanding of how narcolepsy symptoms may affect patients with narcolepsy.

More Videos

  • Cataplexy

    Cataplexy

    Sudden Loss of Muscle Control

    Cataplexy: Sudden Loss of Muscle Control

    “People began to tell me my face would drop.”

    Patients describe the different ways that cataplexy affects them, from a subtle change in facial expression to the complete loss of muscle tone.

  • Hypnagogic Hallucinations

    Hypnagogic Hallucinations

    When Dream-Like Experiences Occur at Wake-Sleep Transitions

    Hypnagogic Hallucinations: When Dream-Like Experiences Occur at Wake-Sleep Transitions

    “It just materializes; it seems very real.”

    Patients describe frightening dream-like experiences that occur during transitions between wake and sleep.

  • Excessive Daytime Sleepiness

    Excessive Daytime Sleepiness

    Feeling Tired All the Time

    Excessive Daytime Sleepiness: Feeling Tired All the Time

    “It was extremely difficult to wake up, and throughout the day, it was difficult to stay awake.”

    Patients describe their experiences with excessive daytime sleepiness.

  • Sleep Paralysis

    Sleep Paralysis

    Feeling Trapped Inside Your Own Body

    Sleep Paralysis: Feeling Trapped Inside Your Own Body

    I couldn't move my arms. I couldn't speak.

    Patients describe the fear and helplessness of being unable to move or speak.

  • Sleep Disruption

    Sleep Disruption

    Poor Sleep Quality

    Sleep Disruption: Poor Sleep Quality

    “Wake up, fall asleep, wake up, fall asleep, then I’d wake up feeling like I got hit by a truck.”

    Patients talk about drifting in and out of sleep all night and waking up exhausted.

  • Impact on Daily Lives

    Impact on Daily Lives

    Impact on Daily Lives

    “I’m at my desk, and I would get so sleepy I couldn’t sit there and concentrate.”

    Patients relate experiences that have affected their daily lives, such as falling asleep at inappropriate times and experiencing frightening dream-like episodes during the transitions between wake and sleep.

  • The Difficult Journey to Diagnosis

    The Difficult Journey to Diagnosis

    The Difficult Journey to Diagnosis

    I got tired of going to the doctors.

    Patients detail their lengthy journeys through multiple doctors and multiple diagnoses.

  • Destination Diagnosis

    Destination Diagnosis

    The Relief of Finally Knowing

    Destination Diagnosis: The Relief of Finally Knowing

    “It was like I was affirmed. Ok, there’s a name for it, and somebody recognizes what it is.”

    Patients express feelings of relief that accompany an accurate diagnosis of narcolepsy.